Survey on Parenting With MS – Being a parent is tough enough! Please take a moment to join in a brief survey on parenting with MS. Your answers and identity are anonymous.
To participate in the survey go to: http://www.surveymonkey.com/s/58CMN7Z
UCSF Department of Neurology Phone: 1(866) MS-GENES or 1(866) 674-3637
Or visit their website: http://neurology.ucsf.edu/msdb/index.html
To participate in the survey go to: https://www.surveymonkey.com/s/VHGZYZ8
Learn more about self-advocating for your Medicare at The Center for Medicare Advocacy Page.
Please go to the link provided, move to the bottom of the page, and fill out the self-guided e-mail submission form asking your U.S. House Representative to sign this bill: http://www.capwiz.com/nmss/issues/alert/?alertid=15602506&type=CO
Today any public building, built post 1990, must meet minimum ADA standards: bathrooms must have one accessible stall, a ramp must allow wheelchair access, rails are to be placed in precarious areas, and parking spots reserved with the now-standard blue logo near the entrances.
Should you discover a public location in conflict with the ADA, we ask you to speak up. For example, if there’s no ramp access into a building, which clearly needs it, begin by calling the owner or management firm. Ask who is in charge of maintenance. Explain politely, but firmly, that they are breaking the law. Give them an opportunity to correct the situation.
The only buildings that truly find a loophole in the Act are registered as historic with the county or state. If access can not be accommodated without ruining the integrity of the landmark, they are not breaking the law. In other words, the building does not need to comply, providing doing so would drastically change the structure to the point of its heritage being dismantled.
Thankfully, most official landmarks understand they are a symbol of America and our freedom for all, and have, without issue, been remodeled to abide the ADA laws. Often you’ll find they’ve placed disabled access in a different area than the primary entrance to minimize the impact of the modifications on the site. Visitors use the blue symbol signs to guide themselves to an accessible entrance.
If you feel there could be access, but isn’t – even at a historic site – check with the management and speak up. Ask them why there’s no access. You probably are not the first, and the answer may make you advocate to seek access, or discover they’ve tried. Either way, you’ve stood up for the Act which has helped so many.
All public buildings that do not fall under a historic title, like a strip mall or some other large gathering place for the public, must have ground level access and updated bathrooms – regardless of date of construction. It is the law. Older buildings are in violation if they fail to meet what the ADA calls “reasonable repairs.”
Just remember, your first step (so to speak) when you find an ADA violation is to start with ground level contact: owners or management. If you find them unresponsive, you can escalate to local government. The Mayor’s office is first. You may want to contact your area’s press outlets for a human interest story. And know that if your communications do not yield results, an ADA lawsuit – against the owner, town, city etc., – can be filed.
Usually, a frank conversation with an ADA law-breaker is all one needs to get the doors open! The Act’s slogan is “Everyone will have the right to live, work and participate fully in the American Experience.”
Advocate for your right to have access to in your community or where you find issues! For more action tips or guidance go to: http://www.aapd.com/site/c.pvI1IkNWJqE/b.5607285/k.42E6/Take_Action_Make_Your_Voice_Heard.htm
Lynda Leeper, who was diagnosed with MS 25 years ago, has since helped to raise over $30,000 for multiple sclerosis research, and another $2,400 for enrichment scholarship programs.
Over the last five years Lynda’s quilt show has raised $30,000.00 for the National MS Society. The Book Sale addition has brought in another $2,400.00 for the The Can Do MS Center.